top of page
Search

Note: The "i's" in the piece are intentional up until the very end to highlight the shame I feel when resting.


In all honesty, i have been spending a lot more time in bed than i would like to admit and i feel lousy about it. i am choosing to talk about my feelings associated with being in bed and resting here because i know i am not the only one who experiences such feelings. Feelings that we are not productive enough when we are resting, not worthy enough to rest and many other narratives we have pushed on us as disabled, chronically ill, pain-filled, exhausted and marginalized folks. These narratives often include disabled folks being told that we are “too lazy” or “too much of a drain on the economy” because our body-minds cannot work the amount needed (day in and day out) to sufficiently feed the ferocious lion, named Capitalism


This lion rules the world and all systems within it. It is a scary, racist, prison- producing, energy-sucking and ableist creature which preys on every individual, specifically the most vulnerable populations. Capitalism feeds off us over and over again and if we are lucky, we will be left with our skeletons mostly intact and if not,  we will cease to exist. Once our bodies cannot withstand exploitation any longer, we no longer have value! This is why i actively chose to rest. Even when i feel lousy about it. And especially when i feel like i need to be “more productive.”


As a black, disabled, queer, neurodivergent individual, my body-mind will never do and be enough to satisfy this creature we are held captive by, so why should i [or we] even try?


Disabled folks have been practicing and living through the practices of Bed Activism. This form of activism is exactly as it sounds, it is work and community building from our beds. So many of us exist in Bed Space Activism without even knowing that we do. For instance, cuddling in bed with friends/family is a  form of activism and an example of collective care. Reading books by disabled authors, who have written from beds, couches, wheelchairs, and/or the ground is activism.


From my personal discoveries of activism, activist spaces, and in “doing the work”,  i know every form of activism looks and feels different to everyone. To me, this form of activism looks like sitting in my hospital bed, tilted up right, my laptop balancing on my knees, covered in cozy blankets, as large rain droplets hit my window. During this time, i meditate as i listen to other activists talk about the importance of liberation, community and rest. My eyes feel heavy through the hum of their voices, but i do not fall asleep. 


i hate naps. So i chose not to nap, I strongly encourage you to take naps, if that works for your body-mind. As Tricia Hersey states in her book "Rest Is Resistance : A Manifesto"(2022):


This work [rest work] is a battle cry for being sick and tired of capitalism and white supremacy. A resting place. An alternative and temporary space of joy and freedom. (Hersey 11)

I could not agree more.


My bed is a space of creativity, rest, sleep, joy and love. I choose to reimagine the bed as more than a physical artifact, but as a portal to new worlds and vibrant disabled futures. I hope you will too. I am still an activist, no matter where I fight from. I still deserve rest, no matter where I take it and so do you. I do not have to do anything to be worthy of rest and neither do you. Whether you rest in bed, on the couch, in your mobility aid(s), in a prison cell or on the ground- You are worth resting for and it is a privilege to rest with you.


Until next time, keep rolling, growing, stimming, moving, shaking, resting, resisting and loving.


Jay Baldwin xx

(they/them) 




A picture of Jay, all cozy in their hospital bed and smiling. Their eyes are almost completely shut and they are holding a stuffed cow tightly.
A picture of Jay, all cozy in their hospital bed and smiling. Their eyes are almost completely shut and they are holding a stuffed cow tightly.









Bibliography


  1. Hersey, Tricia. 2022. Rest Is Resistance: A Manifesto. Little, Brown Spark.

(This book is so worth the read!!!!)


Check out this talk from some amazing activists, who are fiercely doing this work:

  1. UIC Institute for the Humanities. 2022. “The Reciprocal Politics of Bed Space Activism: Creative Resistance and Radical World Making.” YouTube. October 18, 2022. https://www.youtube.com/watch?v=yHO26DZAqUI.


Alt Text: The image is a composite of black-and-white portraits of various Ontario Premiers--Mike Harris, Ernie Eves, Dalton McGuinty, Kathleen Wynne, and Doug Ford, arranged in repeating rows against a purple background. Superimposed over the portraits is bold white text reading: "for 30 Years Disabled Folks in Ontario have been failed by austerity politics, by undermining social services, and by every government.". 

Below this, in the lower third, is a large, contrasting yellow text reading: "Enough is Enough."

Followed by white text reading "endausterity.ca"

For Immediate Release 12 February 2025


Toronto, Ontario—A growing group of organizations and individuals—including Disability Justice Network of Ontario, ODSP Action Coalition, and Toronto Disability Pride March—have come together to respond to over thirty years of social murder and austerity brought about against disabled people across Ontario. From Mike Harris to the current government of Doug Ford, disabled Ontarians have been constantly and consistently failed by the Province of Ontario through the undermining and underfunding of our social systems at every turn and every level. 


“Enough is enough. Action must be taken to change the fundamental direction of the Province of Ontario,” stated Ron Anicich of the EndAusterity.ca Campaign. “Disabled communities in Ontario will not be silent now or following the current election.”


The group has developed a full set of policy positions that will be updated and grow with further community feedback and development because this isn’t an election platform, but a society platform. They urge people across Ontario to take up issues found in the Platform with every party and push now—no matter who wins the next election. 


“This is a call to all Ontarians to take care of each other and hold the powerful to account, together,” said Keat Welsh, an organizer 

 the EndAusterity.ca Campaign, “We see the value in each other and in building the Ontario we dream of together—a place to not just live, but thrive and grow together.”  


Members of the public are encouraged to check out endausterity.ca and join the movement.

-30-


Media Contact:


The image is a graphic with a textual message. It features a blue background at the top with white text reading, "Submission to the National Housing Council." Below this, there is a black rectangle with white and black borders, containing a yellow background with black text reading "...the solution for these issues is not policing or reverting to cruelties upon our neighbors—and our unhoused neighbors are our neighbors—but instead clear, viable mass reinvestment back into the housing system. But this investment does not stop with housing, but must be part of a wider strategy to revitalize the social systems across these territories and in every Province..."

After some discussion with our friends at Accessible Housing Network, I was encouraged to take some of our positions around housing and articulate them to the National Housing Council’s Neha Review Panel. You can read our submission below, but first some details on Neha.


Neha will examine the right to safe, adequate and affordable housing for women, Two Spirit, Trans, and gender-diverse people, and the government's duty to uphold this right. Neha is a Kanien'kéha-Mohawk word meaning "our ways". It describes a way of life that is open, peaceful, supportive and healing. Seen as an ever-expanding circle, Neha will be a space where people can share their experiences and work together towards solutions.


Neha will focus on:

  1. The impact of the failure to uphold the right to safe, adequate and affordable housing for women, Two Spirit, Trans, and gender-diverse people, including the impact that this issue has on the progressive realization of the right to adequate housing in Canada;

  2. The actions and inactions of the Government of Canada (e.g., laws, policies, programs, regulations, recommendations, commitments, action plans, strategies, etc.) that have led to the failure to uphold the right of women, Two Spirit, Trans, and gender-diverse people to safe, adequate and affordable housing, including the impact that these actions and inactions have on the Government of Canada's national and international commitments to housing and human rights.

  3. Solutions within the jurisdiction of Parliament to address the issue and progressively realize the right to adequate housing in Canada.


In turn, we would strongly encourage you to write to Neha and learn more at:


 

Our Submission:

29 January 2024

Hello folks,


My name is Brad Evoy, I am a member of the Qalipu Mi’kmaq Nation and a long-term renter currently living in Toronto, previously having lived in my home community in the Bay of Islands in Western Newfoundland, in Gatineau, Quebec, and in Guelph, Ontario. I write to you in my role as the Executive Director at Disability Justice Network of Ontario and a steering committee member of Accessible Housing Network. Founded in 2018, DJNO is an organization devoted to building a world where disabled people are free to be and can hold power to account. Our organization was founded by racialized women and gender diverse disabled people—as such, I have the honour and responsibility to carry forward their vision and ideals into this submission. We have spent much of the last number of years supporting grassroots organizing around encampments, furthering accessible housing regulations on the municipal level, and pushing for accessible housing wherever we can.


We all want to live in a world where measures like encampment protocols and inaccessible emergency shelters are no longer necessary. To me, this is a world where all people in these territories can reach affordable, accessible housing as they and their families need. However, we haven't reached this moment yet.


As we've previously said in many other forums: we know that the vast majority of unhoused folks in this province are themselves disabled. In turn, unhoused disabled folks are part of our community that has been consistently failed by all levels of government. This is especially true across Ontario in cities like Toronto, Hamilton, Guelph, Ottawa, and many more.


As the Canadian Human Rights Commission and the Office of the Federal Housing Advocate have stated disabled people are more likely to experience homelessness because of violence or abuse, and that these figures were even higher for women with disabilities. That's 63% of disabled women who've experienced homelessness in their lifetime because of violence. As well, disabled people are more likely to miss a rent or mortgage payment because of financial issues than people without disabilities.


We are more likely to be forced to move for economic reasons, including financial hardships related to the long shadow of the COVID-19 pandemic and that financial hardship is the main reason that disabled people are forced into homelessness, including missed housing payments. Overall, 45% of disabled people across the country noted that this was the main reason for homelessness. Simply an issue of money. 


And we know that the number of unhoused ODSP and OW recipients that are unhoused has doubled since the Pandemic began and that many more of our unhoused neighbors are kept from these systems due to barriers arising from being unhoused. And, as we also know, these realities are even harsher upon Black, Indigenous, Afro-Indigenous, and other racialized disabled folks due to their clear intersections between colonial, racist policy regimes and that of the restrictive and coercive parts of the housing sector.


In one such instance of coercive housing from our experience in Ontario: we know that when disabled women and gender diverse people experience housing insecurity, they are often coerced into institutional housing through processes like Ontario’s Alternate Levels of Care System following hospitalization. In other instances, disabled women and gender diverse people discharge themselves onto the street to avoid institutionalization practices and the violence experienced through those settings. In reality, disabled women and gender diverse people are placed in a vice and have to make impossible choices—between the cruelty of unhoused precarity and the violences of colonial, faux-’care’ institutions.


Now, as the Association of Municipalities Ontario have discussed in its recent research, the solution for these issues is not policing or reverting to cruelties upon our neighbors—and our unhoused neighbors are our neighbors—but instead clear, viable mass reinvestment back into the housing system. But this investment does not stop with housing, but must be part of a wider strategy to revitalize the social systems across these territories and in every Province—housing investment can only go so far alone and must be supported by:

  • strong social assistance rates that keep up with the increased costs to survive and thrive for disabled people compared to the rest of the population;

  • firm, common rent controls across Provinces that close gaps and do not allow for vacancy decontrol (ie. unlimited rent increases between tenancies);

  • enforceable changes to the Federal and Provincial Building Codes to reflect the best practices of universal and inclusive design, making accessibility a living part of planning and urban design;

  • common aims between the Federal Government and Provinces to close loopholes and prevent clawbacks from supports and regulations focused on disabled and low-income people, especially Black, Indigenous, and racialized women and gender-diverse people; 

  • barrier-free access to the public, well-funded, culturally-appropriate home care services that disabled and older people need to live in place and in their communities; and,   

  • wider commitments to improve additional systems, like accessible transportation, across these territories to ensure a fully barrier-free and accessible world.

We strongly believe that it is only through a combination of measures and a multi-sector, multi-department, multi-level of government approach that focuses on reinvesting and rebuilding can we make real achievements to safe, adequate and affordable housing for women, Two Spirit, Trans, and gender-diverse people.


However, the current reality is different from the aims we set out above. While the Federal Government has abdicated its role in developing social housing over these past thirty years, many of the Provinces have taken reactionary positions vilifying unhoused disabled people, particularly impacting disabled women, Two Spirit, Trans, and gender-diverse people. Meanwhile, Municipalities in Ontario continue to underfund all of the aforementioned areas needed to rebuild our social systems and attack unhoused disabled people, with particular impact towards disabled women, Two Spirit, Trans, and gender-diverse people.


Instead of challenging colonial housing regimes based on building barriers and exacting punishment, we remain with a system where policing and bylaw enforcement are the main tools for working with unhoused disabled peoples across these territories which, ultimately, doesn't get us where we need to be.

We need those in power to pivot their focus from handing more power to private, colonial wealth and instead focus on improving the lived realities of all disabled people, but particularly disabled women, Two Spirit, Trans, and gender-diverse people.


In what we have presented here, I have related things that folks who are unhoused have told us they need. We don't need to keep debating this again and again or wonder how we can solve the current crises.


Rather than half-measures and the status quo, we need long term vision and solutions that ensure that everyone has an affordable and accessible home across these territories.


I know this panel and the National Housing Council will help in furthering these ideals, but it will be for all of us to keep the pressure up until material change is felt by all. There are no rights given by the colonial state, only those honoured. It is up to those in power in Municipalities, Provinces, and the Federal Government to do so.


Respectfully,  


Brad Evoy, Executive Director 

on behalf of Disability Justice Network of Ontario

423 King Street East, Hamilton ON, L8N 1C5

Phone: 289-780-3566 (DJNO)

Email: brad@djno.ca 

Website: www.djno.ca

© 2023 by Disability Justice Network of Ontario.

  • Facebook - White Circle
  • Twitter - White Circle
bottom of page